When Reagan was 5 months old, she began having seizures. She was diagnosed with a catastrophic form of epilepsy called Infantile Spasms. At 2.5 yrs old, she was diagnosed with Mitochondrial Disease, another disorder which is not only catastrophic, but deadly.
Reagan has been affected in many different areas from mito. She has significant neurological impairments, a seizure disorder and substantial developmental delays. She has a visual impairment and has had four cataract surgeries. Her GI system does not function properly (she's 100% tube fed and still has problems nausea/vomiting), and she has a suppressed immune system.
However, she is also the most valiant and tenacious little girl ever. She deserves so much more. She deserves a CURE! Please join us as we raise awareness about Mitochondrial Disorders and raise money to help find a cure for this devastating disease!